You may recall from my last post that I’m a huge proponent of Health IT. You may also recall that it’s personal. My wife has breast cancer. She and I have seen HealthIT’s tremendous benefits and recognize much of its untapped potential. Today I am happy to report that the Office of the National Coordinator for Health Information Technology (ONC), in conjunction with the National Cancer Institute (NCI), recently launched the Cancer Care Video Challenge. The goal of the challenge, according to its website is “to generate personal stories that will motivate and inspire others to use health IT and consumer eHealth tools to achieve better health.”

This challenge is a great call to action. It will further help an industry already trying to improve patient outcomes. Do you have a personal story about cancer and Health IT? Share your story below, or enter the challenge. Just record a video of your story and submit it by December 21.

Tags:

About the author

As Vice President of Strategic Initiatives for Allscripts, Rich Elmore works on innovations, managing exploration and execution of strategic partnerships and acquisitions. During 2011-12, he took a leave of absence to lead the Query Health initiative for the Office of the National Coordinator for Health IT (ONC), US Department of Health and Human Services. He also led ONC’s initiative for Consolidated CDA and Transitions of Care, served as a workgroup leader for ONC’s Direct Project, and was a founding member of the CCHIT Interoperability workgroup. Previously, Rich ran the Flowcast Hospital business for IDX (before the company’s merger with GE Healthcare) and served on the IDX Corporate Strategy Board. Rich has degrees from Dartmouth College (BA) and New School University (MA Economics). He serves on the Scientific Advisory Group for Innovations in Monitoring Population Health Using Electronic Health Records – a multi-year research initiative of the Primary Care Information Project. He also serves on the advisory board to the Sudan Development Foundation, building health clinics in the world’s newest nation (South Sudan), and is Vice President on the Board of Directors for the King Street Center, serving kids and families in need in Burlington, Vermont.

4 COMMENTS on IT’s Personal: Share Your Story to Improve Cancer Care

avatar

Kristina Cunningham says:

10/31/2012 at 1:02 pm

This struck a cord with me. My father and husband both were diagnosed with cancer last year so I got to experience healthcare from the side of a family member. I saw that there was a disconnect between the various physicians and often saw duplicate/unnecessary orders. For example, when my father’s surgeon wanted him to get a CT scan, my father was quick to let the surgeon know that he had just had a PET scan performed for the oncologist and would send her the results. My father knows the technology is out there and is frustrated that he has had to be his own advocate as far as duplicate orders. My husband had similar experience between his surgeon and oncologist. So much needs to be done as far as continuity of care and making healthcare seamless.

We did have one experience of seamless care when my husband presented to the ED with a clot in his leg. When my husband followed up with his primary care physician, the physician had already reviewed the care document sent from Allscripts ED product.

I know we are headed in the right direction, but in the meantime, I am getting blood pressure readings from the oncologist for my father to take to his cardiologist.

avatar

Donna Scott says:

11/01/2012 at 9:05 pm

I have been searching for a way to give back for my incredible fortune to be diagnosed early, have the surgery and reconstruction and receive the coveted label, “cured”. The haunting thing is that during my journey with breast cancer, I found that there were gaps in my preparation for this trip….some so amazing, that I could not fathom what others who where not in healthcare (I am a nurse), could possibly overcome!
It led me to the conclusion that there needs to be a place where those that have been diagnosed can come and learn how to get through these survival challenges. I thought something like a blog or website might be the answer. As I meet other cancer patients in my personal and professional life, I find they have had many of the same gaps in managing the aftermath of the interventions for the disease as I have….so I thought I might try to create a place where one could find “survival tricks for breast cancer chicks”. I have collected quite a few “contributors”.
I am still exploring the right communication vehicle. I have met more and more women who have faced the same frustrations with coping with the cure! Technology IS the vehicle to spread the tricks for cancer chicks to get by!

avatar

Cameron Von St. James says:

11/08/2012 at 12:52 pm

Hi,

I have a quick question about your blog, would you mind emailing me when you get a chance?

Thanks,

Cameron

avatar

Osunuza says:

11/11/2012 at 3:05 am

Hi!! I know you must be going through a really hard time and will have trouble throughout the Chemo process. I know because my Mom had Leukemia and had to go through Chemo too. Trust me, it gets easier and easier when it’s gets closer to the end of it all. I’ll pray for you and I hope all is well at the end of the process! :)

SHARE YOUR COMMENTS:

Your email address will not be published. Required fields are marked *


*